It's crazy how fast all of this has gone. Just 2 weeks after the biopsy and attempt to "take care of the infection," Liz will start chemotherapy for a serious disease. The first diagnosis was devastating, the second diagnosis about the advanced stage of the cancer nearly ripped me apart, but somehow we have been able to absorb the information and cope with the next phase. We keep looking at each other and just emphasizing that we need to take the next step, just try one more thing, keep pushing forward. So far we're hanging in there. We also heard back from the University of Chicago oncologist we asked to consult on treatment, and the doc said that Liz's local oncologist is doing exactly the right thing for this first round of treatment. So throughout the bad news are moments of happiness. Like what just happened while I was typing: Jensen walked over to Cohen and said, "I love you." Then Cohen pushed him over. And both of them laughed.
Cohen knows what's going on.
We've only told him a few things so far (Mom has some bad cells in her body called cancer, it means some parts of her body are sick, we will have a lot of doctor visits to figure out how to get the good cells to fight the bad cells and help her feel better). But he's a self-described "eagle eye" and quite perceptive. He also tends to worry a lot and think about things, sometimes letting out his thoughts and feelings, often not. Such a smart and amazing boy (case in point: I taught him how to play chess yesterday, we played for the 2nd time today, and he totally snookered me out of my queen -- he is already thinking 3 moves ahead). And he has been eyeing me lately, quizzical about my presence on work and school days, and wondering why mom is taking it easy.
So I took Jensen and Cohen to the movie store to pick up a show for "movie night" with Dad and their wonderful Grandma. Jensen had me crank up the "church songs" and I noticed in the mirror that Cohen had his "pickle face" on, which is the easiest way to tell he's worried about something:
Me: What are you thinking about, Buddy?
C: Are you going to be here after church day tomorrow?
Me: You mean when you go to school on Monday?
C: Yes. Are you going to work or is your Spring Break early?
Me: I'm going to be at home. Mom is working with the doctors to help her feel better and fight the bad cells, and she needs to start some new medicine.
C: Will the medicine make her better next week?
Me: It will take a while, my son. She will be tired and probably won't feel well while the medicine works in her body. But we'll make sure that you have time to see her, and that we'll take care of everything for you while she's working on getting better.
C: Do you think she's worried, Dad?
Me: She might be. Feeling worried is OK, especially when people are sick. What do you think?
C: If she's worried, maybe I can give her a hug.
Me: Cohen, your hugs will definitely help her worries go away. I love you, man.
C: I love you too, Dad.
Well, Liz and I didn't plan to start the chemo conversation until tomorrow night. And good thing the mirror is small, so Cohen couldn't see my tears. But this is how his brilliant and sweet soul work: little by little, always concerned about how things impact him, but constantly thinking about how to make sure others feel happy. He is such a special and amazing boy. He healed our hearts, we've helped him through some big trials for a little man, and now perhaps it's time for him to help heal us again in an even bigger way. Along with his brothers, we have no choice but to smile and fight this disease for the long haul.
In case you were wondering, we got Bolt at Family Video for family movie night. Fitting dialogue I just heard, and in case you're wondering, I'M STARVING!
Bolt: The road'll be rough.
Rhino: I have a ball.
Bolt: There's no turnin' back.
Rhino: Guess I'll have to "roll" with the punches!
Bolt: Easy won't be part of the equation...
Rhino: Promise?
Bolt: I gotta warn ya, going into the belly of the beast - danger at every turn.
Rhino: I eat danger for breakfast!
Bolt: You hungry?
Rhino: Starving!
Rhino: I have a ball.
Bolt: There's no turnin' back.
Rhino: Guess I'll have to "roll" with the punches!
Bolt: Easy won't be part of the equation...
Rhino: Promise?
Bolt: I gotta warn ya, going into the belly of the beast - danger at every turn.
Rhino: I eat danger for breakfast!
Bolt: You hungry?
Rhino: Starving!
Well, that about did it for me. Seriously, pass the kleenex. I love you guys. And I love those sweet boys of yours...
ReplyDeleteOh sweet Cohen! Mike just asked if I wanted a tissue-- he brought the whole box! Aaron you have a way with words-- you should write a book in all the spare time you have--LOL! Praying our guts out for you guys! Love you all!
ReplyDeleteLove those tender moments when our kids teach us, they are so perceptive and wise if we stop to listen. Cohen is a sweetheart and you are so right, he has and will heal much for you both. I'm so sorry to hear she's exhausted and tired - but I'm hoping the rest she's gotten today has been good. I also love it when oncologists are on the same pages as each other, that's a sure sign you are headed in the right direction. You're a great dad, Aaron - keep it up. You got this. Nice work on the Bolt quotes... seriously inspiring! :)
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ReplyDeleteWhat Jessica said...(except change M's name to S)! Love, The Clark's
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ReplyDeleteVery, very sweet. Thanks so much for opening up your heart and sharing your difficult journey with us. Hopefully we can help make that journey a little easier for you.
Rhino is by far my favorite character in that movie! And he was animated by a friend of ours and voiced by a member in the ward right next to ours (in Burbank, land of Disney)! You're such an awesome dad. We're sending many prayers your way. Love love love from LA. :)
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